ALD Family Weekend
ALD Family Weekend – Camp At Home Click here to learn more about ALD Family Weekend.
SwanBio Therapeutics Announces Series A Expansion
SwanBio Therapeutics Announces Series A Expansion to Fund its Lead Program and Grow Pipeline in Gene Therapy for Neurological Diseases $52 million is being allocated to progress IND-enabling studies in…
April 2020 Community Calls
April 2020 Community Calls Symptomatic Women: April 27th at 7:00 PM EST facilitated by Emma Hayes Register here AMN Men: April 28th at 5:00 PM EST facilitated by Tim Maguire and…
COVID-19
COVID-19 What is known about COVID-19? 1. COVID-19 is a virus that can cause a severe respiratory illness in some individuals. 2. High-risk groups include older patients and those with…
Family of boy who became sheriff for a day raising awareness of neurological condition
Family of boy who became sheriff for a day raising awareness of neurological condition As an honorary Lehigh County Sheriff 8-year-old Kaleb Holder’s energy was highlighted back in March 2016.…
August Community Call
August Community Call “Newborn Screening, Young Families, and Parents of Asymptomatic Children”– Thursday, August 15 2019 @7 PM EST -Facilitated by Suzanne Flynn, Tara Meady, and Kelly Strenges Click here…
ALD Connect Joins Forces with The Myelin Project!
ALD Connect Joins Forces with The Myelin Project! We are so excited to announce that ALD Connect will be joining forces with fellow ALD patient organization, The Myelin Project! Check…
July Community Calls
July Community Calls Please join us for our July Community Calls! “Symptomatic Women”– Wednesday, July 10th 2019 @7 PM EST -Facilitated by JoAnn Locy and Janis Sherwood Click here to…
New Combination of High-Dose Antioxidants as Therapy for AMN
New Combination of High-Dose Antioxidants as Therapy for AMN A new trial using high dose antioxidants has improved symptoms in patients with AMN by targeting oxidative stress. Read the abstract…
Emory University Newborn Screening Study
Emory University Newborn Screening Study Emory University in Georgia is recruiting ALD patients of any age and gender to give a single blood sample to provide quality control for newborn screening…