¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 16 de julio a las 5pm EDT (hora UTC-4) / 18 hs de Argentina. Regístrese…
Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place for ALD patients and families to lead the way in brainstorming ideas and resources for the ALD community. This group operates on a drop-in basis,…
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on Family and Friends. The call will be held on Thursday, July 18th at 7pm EDT. Please reach out to [email protected] if you have any questions. You can register for the call…
Please join us for a community call on Monday, July 22nd at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Please register here: https://lp.constantcontactpages.com/ev/reg/qu2gvra *Please note this call is for patients and caregivers only
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, July 23rd at 7 PM EDT for AMN men. Register here: https://lp.constantcontactpages.com/ev/reg/fmpxbhy *Please note this call is for men with AMN. If you are a caregiver who wants to support a son or partner who has AMN, please send…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, July 25th at 5:00 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Register here: https://lp.constantcontactpages.com/ev/reg/f38awhz *Please note this call is for patients and caregivers only.
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, July 31st at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Register here: https://lp.constantcontactpages.com/ev/reg/94eddbd *Please note this call is for patients and caregivers only
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