Please join us for a community call facilitated by Jesse Torrey on Tuesday, July 7th at 8 PM EDT for pre-, post-, and non-transplanted families. This community call will occur on the first Tuesday of every month at 8 PM EDT. Please reach out to [email protected] if you have any questions. **NOTE: Please do…
Please join us for a webinar on Monday, July 20th at 7 PM EDT regarding physical therapy techniques for AMN patients. Panelists for this webinar include Jen Keller, PT, Kathy Zackowski, PhD, OTR, MCCS, Patrick Broussard, and Tim Maguire. Please reach out to [email protected] with any questions. Use the link below to register for this…
Adrenoleukodystrophy (ALD) Webinar Series NSGC, in partnership with PRIME Education and the ALD Alliance, is excited to offer a series of upcoming webinars focused on Adrenoleukodystrophy (ALD). Each live webinar will be offered twice on two different dates. Attendees can earn 0.5 hours of CME/CE for each webinar. Clinical Updates on Newborn Screening and Disease…
ADRENOLEUKODYSTROPHY (ALD) WEBINAR SERIES NSGC, in partnership with PRIME Education and the ALD Alliance, is excited to offer a series of upcoming webinars focused on Adrenoleukodystrophy (ALD). Each live webinar will be offered twice on two different dates. Attendees can earn 0.5 hours of CME/CE for each webinar. Clinical Updates on Newborn Screening and Disease…
Join us on November 13 and 14, 2020 for our virtual ALD Connect Annual Meeting and Patient Learning Academy! Registration is required in order to receive Zoom links and post-meeting materials. Registration is free for patients and caregivers. Click here to register. Our main conference page is here! 2020 ALD Connect Annual Meeting and Patient…
December 9, 2020 at 12 PM EST Register here: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehfpzwin23786c5b We know that MRIs are a very stressful time for ALD families. Please join us to hear from our panel about what to expect during these appointments. Katie Weagle, MS, CCLS Child Life Specialist Shannon Kennedy, BSN, RN Interventional Radiology Nurse Lindsay Guidoboni, RT(R)(MR) BS…
Please join us for a community call facilitated by Tim Maguire, Ken Dieffenbach, and Justin D’Agostino on Tuesday, December 22nd at 7 PM EST for AMN men. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehgl3sze77c4718e **NOTE: Please do not register for this call unless you are…
Please join us for a community call on Monday, December 28 at 7 PM EST for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehgl3t0v1ca8a33a **NOTE: Please do not register for this call unless you are a patient…
