ALD Community Calendar

Cerebral ALD Patients, Families, & Caregivers: Community Call

Please join us for a community call facilitated by Jesse Torrey on Tuesday, July 7th at 8 PM EDT for pre-, post-, and non-transplanted families. This community call will occur on the first Tuesday of every month at 8 PM EDT. Please reach out to [email protected] if you have any questions.   **NOTE: Please do…

Details

Date:
July 7, 2020
Time:
8:00 pm - 9:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eh55krenf652dbd2

ALD Connect Webinar: Physical Therapy for AMN Patients

Please join us for a webinar on Monday, July 20th at 7 PM EDT regarding physical therapy techniques for AMN patients. Panelists for this webinar include Jen Keller, PT, Kathy Zackowski, PhD, OTR, MCCS, Patrick Broussard, and Tim Maguire. Please reach out to [email protected] with any questions. Use the link below to register for this…

Details

Date:
July 20, 2020
Time:
7:00 pm - 8:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eh79nosz251a4bcf

Clinical Updates on Newborn Screening and Disease Monitoring in Adrenoleukodystrophy

Adrenoleukodystrophy (ALD) Webinar Series NSGC, in partnership with PRIME Education and the ALD Alliance, is excited to offer a series of upcoming webinars focused on Adrenoleukodystrophy (ALD). Each live webinar will be offered twice on two different dates. Attendees can earn 0.5 hours of CME/CE for each webinar. Clinical Updates on Newborn Screening and Disease…

Details

Date:
September 30, 2020
Time:
2:00 pm - 3:00 pm
Website:
https://primeinc.org/webinars/3883

If you would like to add an event to the ALD Community Calendar, please email your event details [email protected]. Please include the name of the event, description, and contact information. Thank you!