ALD Community Calendar

6th Annual ALD Standards of Care Conference 2022 January 13-14, 2022 https://www.flipcause.com/secure/cause_pdetails/MTM0OTA4

Please join X out ALD on September 17, 2022 for our Third-Annual Outrun ALD 5K. Outrun ALD will be held as a virtual event once again this year. Run, walk, bike or cheer wherever you are while helping raise awareness and funds to support the tireless efforts of the physicians and researchers at the University…

Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place for ALD patients and families to lead the way in brainstorming ideas and resources for the ALD community. This group operates on a drop-in basis,…

Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on Redefining Hope. The call will be held on Thursday, June 20th at 7pm EDT. Please reach out to [email protected] if you have any questions. You can register for the call using…

Please join us for a community call on Monday, June 24th at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/q428zvm *Please note this call is for patients and caregivers only

Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, June 25th at 7 PM EDT for AMN men. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/qq2j2jj *Please note this call is for men with AMN. If you are a caregiver who wants to support a…

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, June 26th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/32ewqtr *Please note…

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, June 27th at 5:00 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/rzxcuep *Please note this call is for patients…

¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 16 de julio a las 5pm EDT (hora UTC-4) / 18 hs de Argentina. Regístrese…

Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place for ALD patients and families to lead the way in brainstorming ideas and resources for the ALD community. This group operates on a drop-in basis,…

Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on Family and Friends. The call will be held on Thursday, July 18th at 7pm EDT. Please reach out to [email protected] if you have any questions. You can register for the call…

Please join us for a community call on Monday, July 22nd at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Please register here: https://lp.constantcontactpages.com/ev/reg/qu2gvra   *Please note this call is for patients and caregivers only