Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, December 18th at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/sh5m8rp. *Please note this call is for…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, December 19th at 5:00 PM EST for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/2uwhxsk. *Please note this call is for patients and caregivers only.
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on "Getting Through the HoliDAZE". The call will be held on Thursday, December 19th at 7pm EST. Please reach out to [email protected] if you have any questions. You can register for the call…
Please join us for a community call on Monday, December 23rd at 7 PM EST for symptomatic women with ALD facilitated by Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/mvqygc6. *Please note this call is for patients and caregivers only
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 7 de enero a las 4pm EST (hora UTC-5) / 18 hs de Argentina. Regístrese…
Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place for ALD patients and families to lead the way in brainstorming ideas and resources for the ALD community. This group operates on a drop-in basis,…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, January 23rd at 5:00 PM EST for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/zm9ywew. *Please note this call is for patients and caregivers only.
The Courageous Parents Network is offering the following webinar. You can view more and register at the following link: https://courageousparentsnetwork.org/events/supporting-and-celebrating-the-siblings "From the time that their sibling is diagnosed with a serious illness, the other children will need support. As the family dynamic shifts, new worries are present for both the sibling and the parent. Dr.…
Please join us for a community call on Monday, January 27th at 7 PM EST for symptomatic women with ALD facilitated by Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/467x9wh. *Please note this call is for patients and caregivers only
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, January 28th at 7 PM EST for AMN men. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/3tdx2tv. *Please note this call is for men with AMN. If you are a caregiver who wants to support a son or partner…
Please join us for a community call facilitated by Kathleen O'Sullivan-Fortin and Christie Higuera on Wednesday, January 29th at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/qm55wnt. *Please note this call is…
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC and Emma Hayes. This month's call will be focused on "Do you want me to push you?". The call will be held on Thursday, January 30th at 7pm EST. Please reach out to [email protected] if you have any questions.…
