¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 20 de agosto a las 5pm EDT (hora UTC-4) / 18 hs de Argentina. Regístrese…
Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place for ALD patients and families to lead the way in brainstorming ideas and resources for the ALD community. This group operates on a drop-in basis,…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, August 22nd at 5:00 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/ergv83u. *Please note this call is for patients and caregivers…
Please join us for a community call on Monday, August 26th at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/a778ykg *Please note this call is for patients and caregivers…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, August 27th at 7 PM EDT for AMN men. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/qz9zrzs *Please note this call is for men with AMN. If you are a caregiver who wants to support a son or partner…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, August 28th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/e4thje4 *Please note this call is…
Please join us for a 90-minute Community Call co-hosted by ALD Connect (US-based) and Alex TLC (UK-based) on Sunday, September 8th at 10am Eastern Daylight Time (UTC-4 Time)/ 3pm British Summer Time. Everyone in the ALD community is welcome to join. Reach out to [email protected] if you have any questions. Register here: https://lp.constantcontactpages.com/ev/reg/cp9f4dz
Join us for a webinar titled "ALD Genetics 101", which will serve as both a refresher on basic ALD genetics and delve into more complex genetic topics. This webinar will feature genetic counseling student Felicity Emerson, Ph.D. The webinar will take place on Thursday, September 12th at 7pm Eastern Time. You can register using the…
Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place for ALD patients and families to lead the way in brainstorming ideas and resources for the ALD community. This group operates on a drop-in basis,…
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on "The Power of Community". The call will be held on Thursday, September 19th at 7pm EDT. Please reach out to [email protected] if you have any questions. You can register for the…
Please join us for a community call on Monday, September 23rd at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register for the community call using the following link: https://lp.constantcontactpages.com/ev/reg/fejqrp7. *Please note this call is…
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 24 de septiembre a las 5pm EDT (hora UTC-4) / 18 hs de Argentina. Regístrese…
