ALD Connect will be hosting four Bootcamps in 2021. These will be half-day virtual meetings. Each will consist of four webinars and an Ask the Experts session. Register here. 11:00 AM EDT Standards of Care, Assessments 12:00 PM EDT Crucial Conversations 1:00 PM EDT Mental Health and Impact on Relationships and Families 2:00 PM EDT … Continued

ALD Connect will be hosting four Bootcamps in 2021. Register here: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehz9y6i6e3967965 Cerebral ALD Bootcamp (May 22, 2021) 11:00 AM Transplant 101: BMT and Gene Therapy 12:00 PM Session 2: Preparing Your Family for Transplant 1:00 PM Session 3: Life After Leaving the Hospital 2:00 PM Session 4: Taking Care of the Caretakers 3:00 PM … Continued

Please join us for our ALD Connect Bootcamp for Men with AMN on Saturday, June 12, 2021 from 11:00 AM-4:00 PM. The Bootcamp will consist of four webinars and an Ask-the-Experts session. We are finalizing topics and presenters. Our current tentative schedule is: 11:00 AM Standards of Care, Dr. Florian Eichler 12:00 PM Cerebral ALD, … Continued

Q: Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be improved upon for patients and families with ALD? Are you curious how you might be able to advance a cure for ALD? A: JOIN US … Continued

The ULF is thrilled to be offering the Scientific Symposium virtually this year on Thursday, June 24th! Registration is now open – click here. The program is here.

The United Leukodystrophy Foundation will be hosting their annual Family Conference on Friday and Saturday, June 25th and 26th. Register here.