Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, January 19th, 2023 at 5 PM EST for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejliqqe9bfb86ddc **Please do not register for this call unless…
Please join us for a community call on Monday, January 23rd at 7 PM EST for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejliqqee05a59817 **Please do not register for this call unless you are…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, January 24th at 7 PM EST for AMN men. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejliqqf06521fc74. **Please do not register for the call unless you are a patient or…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, January 25th at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejliqqfe9cd81bda. **Please do not register for…
Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, February 5th at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. Please…
Join us for a webinar on February 12th at 4pm EST (UTC-5 Time) with Dr. Stephan Kemp and Dr. Troy Lund to introduce "The Grey Zone" (https://aldconnect.org/greyzone/), a research project funded by ALD Connect and aimed at understanding which genetic variants in the ABCD1 gene put patients at higher risk for ALD symptoms, particularly cerebral…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Monday, February 20th, 2023 at 5 PM EST for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please use the following link to register for the call: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejnfl7xj3784c228 **Please do not register for…
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 21 de febrero a las 4pm EST (hora UTC-5) / 18 hs de Argentina. Regístrese…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, February 22nd at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejnhjldl955a43fd. **Please do not register for…
Please join us for a community call on Monday, February 27th at 7 PM EST for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Please register for the call using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejnhjle0091c388d **Please do not register for the call…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, February 28th at 7 PM EST for AMN men. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejnhjlei2dfb1cbb **Please do not register for the call unless you are a…
Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, March 5th at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. You…
