Join us for a webinar on December 13th at 7pm EST on physical therapy considerations for the management of X-Linked ALD. The webinar will be led by Nisha Bhandaru, a Boston University Doctor of Physical Therapy Student with a family history of ALD. Register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejiraw0p3677a7bd
Please join us for a community call on Monday, December 19th at 7 PM EST for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register for the call using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejjqcqzcea7e3c3b **Please do not register for this…
Q:Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be improved upon for patients and families with ALD? Are you curious how you might be able to advance a cure for ALD? A: JOIN US for…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, December 27th at 7 PM EST for AMN men. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejjqcqzu4b5c79b2 **Please do not register for the call unless you are a…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, December 28th at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejjqcr0pfdcf1b0f **Please do not register for…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, December 29th, 2022 at 5 PM EST for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejk9ramn080a3006 **Please do not register for this call unless you…
Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, January 8th at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. You…
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 17 de enero a las 4pm EST (hora UTC-5) / 18 hs de Argentina. Regístrese…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, January 19th, 2023 at 5 PM EST for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejliqqe9bfb86ddc **Please do not register for this call unless…
Please join us for a community call on Monday, January 23rd at 7 PM EST for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejliqqee05a59817 **Please do not register for this call unless you are…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, January 24th at 7 PM EST for AMN men. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejliqqf06521fc74. **Please do not register for the call unless you are a patient or…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, January 25th at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejliqqfe9cd81bda. **Please do not register for…
