Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, June 5th at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. Register…
Q:Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be improved upon for patients and families with ALD? Are you curious how you might be able to advance a cure for ALD? A: JOIN US for…
Please join us for a community call on Monday, June 27th at 7 PM EDT for symptomatic women facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Please use the following link to register for this call: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej8s8ae951753c1c **Please do not register for this call unless you…
Please join us for a community call facilitated by Ken Dieffenbach on Tuesday, June 28th at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej8s8aef0aeed88d **Please do not register for this call unless you are a patient or caregiver**
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen OSullivan-Fortin on Wednesday, June 29th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej8s8aep05dff00c **Please do not register for this call…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, June 30th, 2022 at 5:30 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej8s8af21a67c9f2 **Please do not register for this call unless you are a…
Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, July 10th at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. Please register…
On July 22, 2022, ALD Connect will host an Externally-Led Patient-Focused Drug Development meeting to provide an opportunity for the Food and Drug Administration (FDA), industry partners, and other key stakeholders to hear directly from adults with ALD and their caregivers. They will explain the impact the disease has on their daily lives, what meaningful…
Please join us for a community call on Monday, July 25th at 7 PM EDT for symptomatic women facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejarhlhmc8af8cc6 **Please do not register for this call unless you are a patient or…
Please join us for a community call facilitated by Ken Dieffenbach on Tuesday, July 26th at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. Register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejarhli146a0a866 **Please do not register for this call unless you are a patient or a caregiver**
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, July 27th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register for the call with the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejarhlic4351cc9f **Please…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, July 28th, 2022 at 10 AM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejarhlipcf8c11ee **Please do not register for this call unless you…
