Please join us for a community call on Monday, April 25th at 7 PM EDT for symptomatic women facilitated by Janis Sherwood. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej5h57jy7dcf98aa. **Please do not register for this event unless you are a patient or caregiver**
Please join us for a community call facilitated by Ken Dieffenbach on Tuesday, April 26th at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej5h57k63fc41c2a **Please do not register for this event unless you are a patient or caregiver**
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan Fortin on Wednesday, April 27th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. This call will also feature a guest appearance from mental health professional, Johanna Bond, LMHC. Please reach out to [email protected]…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, April 28th, 2022 at 5:30 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej5h57kieac89806. **Please do not register for this call unless you are…
Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, May 1st at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. Please…
Join us for a webinar on May 3rd at 7pm EDT on Special Needs Financial Planning with special guest Cynthia R. Haddad, CFP. Cindy is a wealth advisor, co-founder, and partner at Special Needs Financial Planning. Register to receive a copy of Cindy's book, "The Special Needs Planning Guide: How to Prepare for Every Stage…
Please join us for a community call on Monday, May 23rd at 7 PM EDT for symptomatic women facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej6wxvus2ebac8fa. **Please do not register for this event unless you are a patient or…
Please join us for a community call facilitated by Ken Dieffenbach on Tuesday, May 24th at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej6wxvv2f0036f8e. **Please do not register for this call unless you are a patient or caregiver**
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan Fortin on Wednesday, May 25th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej6zf5wl9ac76105. **Please do not register for…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, May 26th, 2022 at 5:30 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Use the following link to register for the call: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej6zf5wr0f90edfc. **Please do not register for the…
Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, June 5th at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. Register…
Q:Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be improved upon for patients and families with ALD? Are you curious how you might be able to advance a cure for ALD? A: JOIN US for…
