ALD Community Calendar

The United Leukodystrophy Foundation will be hosting their annual Family Conference on Friday and Saturday, June 25th and 26th. Register here.

Please join us for a community call on Monday, June 28th at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ei5e8pyc900c6094   ***NOTE: Please do not register for this call unless you are a…

Please join us for a community call facilitated by Tara Meady, Suzanne Flynn, and Kathleen O’Sullivan Fortin on Wednesday, June 30th at 7:30 PM EDT (UTC-4 Time) for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ei5e8qly02266e0b   ***NOTE: Please…

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Wednesday, July 7th, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ei5nlg737ac686d6   ***Please do not register for this…

¡Únase a nosotros para una llamada comunitaria de ALD Connect en español! La llamada se llevará a cabo el 10 de julio a las 5 pm EDT (hora UTC-4) y será facilitada por Jean Cappello. Regístrese usando este enlace: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ei5e6ssmac46cd95 **No se registre para esta llamada a menos que sea un paciente o un cuidador.…

Please join us for a community call on Monday, July 26th at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected] if you have any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eiakponj233f6c9e ***Please do not register for this event unless you are a patient…

Please join us for a community call facilitated by Suzanne Flynn and Kathleen O’Sullivan Fortin on Wednesday, July 28th at 7:30 PM EDT (UTC-4 Time) for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eiakqhufd01b987d ***Please do not register for…

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Tuesday, August 3rd, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eiakqi2ue82148c9 ***Please do not register for this call unless…

Please join us for a community call facilitated by Ken Dieffenbach and Justin D’Agostino on Tuesday, August 3rd at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eiakpozefab20d66 ***Please do not register for this call unless you are a patient…

Symptomatic Women with ALD Bootcamp August 7, 2021 Register here: https://events.r20.constantcontact.com/register/eventReg?oeidk=a07ei9g462x0097a356&oseq=&c=&ch= *schedule subject to change* 11:00 AM EDT WEBINAR Overview of Symptoms in Women with ALD 12:00 PM EDT WEBINAR Symptom Management 1:00 PM EDT WEBINAR Coping with an ALD Diagnosis 2:00 PM EDT WEBINAR Looking Ahead: Future studies 3:00 PM EDT OPEN DISCUSSION Ask…

Q: Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be improved upon for patients and families with ALD? Are you curious how you might be able to advance a cure for ALD? A: JOIN US…

Please join us for a community call on Monday, August 23rd at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected] if you have any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eif34mkje1473144 **Please do not register for this event unless you are a patient…