¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 19 de noviembre a las 4pm EST (hora UTC-5) / 18 hs de Argentina. Regístrese…
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on "Finding Meaning and Purpose in Life". The call will be held on Thursday, November 21st at 7pm EST. Please reach out to [email protected] if you have any questions. Register using the…
Please join us for a community call on Monday, November 25th at 7 PM EST for symptomatic women with ALD facilitated by Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Please register using the following link: https://lp.constantcontactpages.com/ev/reg/4kanc92 *Please note this call is for patients and caregivers only
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, November 26th at 7 PM EST for AMN men. Please register using the following link: https://lp.constantcontactpages.com/ev/reg/6j7spjw *Please note this call is for men with AMN. If you are a caregiver who wants to support a son or partner who…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, December 17th at 7 PM EST for AMN men. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/625a244. *Please note this call is for men with AMN. If you are a caregiver who wants to support a son or partner…
Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place for ALD patients and families to lead the way in brainstorming ideas and resources for the ALD community. This group operates on a drop-in basis,…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, December 18th at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/sh5m8rp. *Please note this call is for…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, December 19th at 5:00 PM EST for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/2uwhxsk. *Please note this call is for patients and caregivers only.
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on "Getting Through the HoliDAZE". The call will be held on Thursday, December 19th at 7pm EST. Please reach out to [email protected] if you have any questions. You can register for the call…
Please join us for a community call on Monday, December 23rd at 7 PM EST for symptomatic women with ALD facilitated by Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/mvqygc6. *Please note this call is for patients and caregivers only
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 7 de enero a las 4pm EST (hora UTC-5) / 18 hs de Argentina. Regístrese…
ALD Connect will host a special interactive workshop for unaffected siblings of children with ALD and their parents/caregivers! Jesse Torrey, LAC, and Anna Torrey, an ALD sibling, will lead a session on Zoom to talk about what it's like to have a sibling who has ALD. Join us on Sunday, January 26th at 4pm Eastern…
