Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, September 26th at 5:00 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/mrv2tk6. *Please note this call is for patients and caregivers only.
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on "The Rest of the Family". The call will be held on Thursday, October 17th at 7pm EDT. Please reach out to [email protected] if you have any questions. You can register for…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, October 22nd at 7 PM EDT for AMN men. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/6gcsytc. *Please note this call is for men with AMN. If you are a caregiver who wants to support a son or…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, October 24th at 5:00 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register for the event at the following link: https://lp.constantcontactpages.com/ev/reg/kjceygr. *Please note this call is for…
Please join us for a community call on Monday, October 28th at 7 PM EDT for symptomatic women with ALD facilitated by Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/yw8upr2. *Please note this call is for patients and caregivers…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, October 30th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/cex96z6. *Please…
Join us for ALD Connect's 2024 Annual Meeting and Patient Learning Academy in Washington, D.C. at the Embassy Suites by Hilton Convention Center from November 8-9, 2024. Virtual registration is also available. Find out more and register on our meeting website here: https://aldconnect.zohobackstage.com/2024#/.
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 19 de noviembre a las 4pm EST (hora UTC-5) / 18 hs de Argentina. Regístrese…
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on "Finding Meaning and Purpose in Life". The call will be held on Thursday, November 21st at 7pm EST. Please reach out to [email protected] if you have any questions. Register using the…
Please join us for a community call on Monday, November 25th at 7 PM EST for symptomatic women with ALD facilitated by Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Please register using the following link: https://lp.constantcontactpages.com/ev/reg/4kanc92 *Please note this call is for patients and caregivers only
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, November 26th at 7 PM EST for AMN men. Please register using the following link: https://lp.constantcontactpages.com/ev/reg/6j7spjw *Please note this call is for men with AMN. If you are a caregiver who wants to support a son or partner who…
ALD Connect will host a special interactive workshop for unaffected siblings of children with ALD and their parents/caregivers! Jesse Torrey, LAC, and Anna Torrey, an ALD sibling, will lead a session on Zoom to talk about what it's like to have a sibling who has ALD. Join us on Sunday, January 26th at 4pm Eastern…
