ALD Community Calendar

Patient-Led Planning Committee (A.K.A. Workgroup 4)

Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place for ALD patients and families to lead the way in brainstorming ideas and resources for the ALD community. This group operates on a drop-in basis,…

Details

Date:
September 18
Time:
7:00 pm - 8:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/r39nnya

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Structured Community Call: Mental Health

Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on "The Power of Community". The call will be held on Thursday, September 19th at 7pm EDT. Please reach out to [email protected] if you have any questions. You can register for the…

Details

Date:
September 19
Time:
7:00 pm - 8:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/9rx9ayr

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Symptomatic Women

Please join us for a community call on Monday, September 23rd at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register for the community call using the following link: https://lp.constantcontactpages.com/ev/reg/fejqrp7.   *Please note this call is…

Details

Date:
September 23
Time:
7:00 pm - 8:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/fejqrp7

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

llamada comunitaria en español

¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 24 de septiembre a las 5pm EDT (hora UTC-4) / 18 hs de Argentina. Regístrese…

Details

Date:
September 24
Time:
5:00 pm - 6:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/4ye32se

Organizer

Fundación Lautaro te Necesita y ALD Connect

Community Call: AMN Men

Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, September 24th at 7 PM EDT for AMN men. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/u2974f6. *Please note this call is for men with AMN. If you are a caregiver who wants to support a…

Details

Date:
September 24
Time:
7:00 pm - 8:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/u2974f6

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, September 25th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/7ftqqeb. *Please note…

Details

Date:
September 25
Time:
7:30 pm - 8:30 pm
Website:
https://lp.constantcontactpages.com/ev/reg/7ftqqeb

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted)

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, September 26th at 5:00 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/mrv2tk6. *Please note this call is for patients and caregivers only.

Details

Date:
September 26
Time:
5:00 pm - 6:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/mrv2tk6

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Structured Community Call: Mental Health

Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on "The Rest of the Family". The call will be held on Thursday, October 17th at 7pm EDT. Please reach out to [email protected] if you have any questions. You can register for…

Details

Date:
October 17
Time:
7:00 pm - 8:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/22w7c6t

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: AMN Men

Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, October 22nd at 7 PM EDT for AMN men. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/6gcsytc.   *Please note this call is for men with AMN. If you are a caregiver who wants to support a son or…

Details

Date:
October 22
Time:
7:00 pm - 8:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/6gcsytc

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted)

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, October 24th at 5:00 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register for the event at the following link: https://lp.constantcontactpages.com/ev/reg/kjceygr.   *Please note this call is for…

Details

Date:
October 24
Time:
5:00 pm - 6:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/kjceygr

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Symptomatic Women

Please join us for a community call on Monday, October 28th at 7 PM EDT for symptomatic women with ALD facilitated by Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/yw8upr2.   *Please note this call is for patients and caregivers…

Details

Date:
October 28
Time:
7:00 pm - 8:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/yw8upr2

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, October 30th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/cex96z6.   *Please…

Details

Date:
October 30
Time:
7:30 pm - 8:30 pm
Website:
https://lp.constantcontactpages.com/ev/reg/cex96z6

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

If you would like to add an event to the ALD Community Calendar, please email your event details [email protected]. Please include the name of the event, description, and contact information. Thank you!