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ALD Connect

What is ALD?
About Us
Trials & Research
Resources
Get Involved
News
Contact Us

What is ALD?
About Us
Trials & Research
Resources
Get Involved
News
Contact Us

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6000

Contact Us

Call Us
(833) 525-3266
Mail
[email protected]
Address
ALD Connect
35 Village Road Suite 100 #353306
Middleton, MA 01949, USA

Latest News

PRESS RELEASE: Poxel Announces New Strategic Direction with Increasing Focus on Rare Metabolic Diseases Following Recent Achievements
July 13, 2021
Quality of life in women with X-ALD
May 10, 2021
Plasma NfL and GFAP as biomarkers of spinal cord degeneration in adrenoleukodystrophy
January 8, 2021
Statement for ALD Patients Considering the COVID-19 Vaccine
December 19, 2020

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Viking Therapeutics is a member of our Industry Ad

Viking Therapeutics is a member of our Industry Advisory Council. They are now recruiting for: 𝐴 𝑆𝑡𝑢𝑑𝑦 𝑡𝑜 𝐴𝑠𝑠𝑒𝑠𝑠 𝑡ℎ𝑒 𝑃ℎ𝑎𝑟𝑚𝑎𝑐𝑜𝑑𝑦𝑛𝑎𝑚𝑖𝑐𝑠 𝑜𝑓 𝑉𝐾0214 𝑖𝑛 𝑀𝑎𝑙𝑒 𝑆𝑢𝑏𝑗𝑒𝑐𝑡𝑠 𝑊𝑖𝑡ℎ 𝐴𝑀𝑁

Link in our bio!

Contacts:
Marianne Mancini
858-704-4674
mmancini@vikingtherapeutics.com

or

Becky Steele
858-704-4687
rsteele@vikingtherapeutics.com

#adrenoleukodystrophy #ald #adrenomyeloneuropathy #amn #aldconnect

It always makes us happy to be able to help our AL

It always makes us happy to be able to help our ALD community members! Our Michael Benton Travel Scholarship Program allows us to assist ALD patients and families with travel expenses for medical procedures, doctor visits, patient events, and scientific conferences. Travel scholarships are intended to help offset travel costs but not to cover all costs in full.

Dr. B is about to run for ALD! Comment your well w

Dr. B is about to run for ALD! Comment your well wishes below or use #drbrunsforald today on social media!

Please consider making a donation to ALD Connect this weekend! We would love to see donations equal to every mile Dr. B runs!

#adrenoleukodystrophy #ald #adrenomyeloneuropathy #amn #newbornscreening #nbs #westernstates #westernstates100

ALD Connect strives to be inclusive. We are intere

ALD Connect strives to be inclusive. We are interested in hearing from members of our community whose race, color, sexual orientation, gender identity, religion, national origin, age, disability, marital status, or socioeconomic status has influenced their experience with ALD. We would like to plan a small group discussion, and we would like to coordinate a panel with diverse patient perspectives for our Annual Meeting and Patient Learning Academy in November.

Please let us know if you are willing to share your story. You can send us a message or email us at info@aldconnect.org.

#aldconnect #adrenoleukodystrophy #amn #adrenomyeloneuropathy #amn #newbornscreening #nbs #womenwithald

Happy Father's Day to all the dads in our ALD comm

Happy Father's Day to all the dads in our ALD community! We are grateful for you today, and every day. 💙

#adrenoleukodystrophy #ald #adrenomyeloneuropathy #amn #newbornscreening #nbs

Have you heard? ALD connect Board Member, Dr. @jos

Have you heard? ALD connect Board Member, Dr. @joshbonkowsky is running the Western States 100 mile endurance race this month. We hope that 100 people will support our campaign by making a donation to @aldconnect! Be sure to follow us on race day, June 26!

#drbrunsforald

Visit our website to see how else you can help: https://aldconnect.org/drb/

#adrenoleukodystrophy #ald #adrenomyeloneuropathy #amn #newbornscreening #nbs

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