Patient Learning Academy 2020
PLA Welcome (Kathleen O’Sullivan-Fortin)
ALD Family Weekend: Building Community (Nic Adler)
More than a Diagnosis: Living with ALD and the Mental Health Impact (Johanna Bond, LMHC)
Endocrine Considerations in Adrenoleukodystrophy (Dr. Molly Regelmann)
Genetic Counseling (Deirdre Sumski, GC and Janis Sherwood)
Functional Considerations in Symptomatic Myelopathy Associated with ALD (Dr. Brian Wishart)
Women with ALD: Restless Legs Syndrome and Movement Disorders (Dr. John Winkelman and Dr. Nutan Sharma)
Education Supports for ALD Boys: IEPs AND 504 Plans (Nicole Metsistso Mazer, Esq.)
Post-Transplant (Dr. Troy Lund, Julie Purschke and Jillian Smith)
Planning for the Future - Financial Planning (John Nadworny, CFP®, CTFA, Affinia Financial Group and Jesse Torrey)
Grassroots Fundraising (Chris and Katie Marino, Jamie McAnelly, Cassie Groh)
Ask the Experts
Dr. Joshua Bonkowsky, University of Utah
Dr. Florian Eichler, Massachusetts General Hospital
Dr. Troy Lund, University of Minnesota
Dr. Molly Regelmann, Children's Hospital at Montefiore/Albert Einstein College of Medicine
Dr. Keith Van Haren, Stanford University
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