Patient Learning Academy 2019
November 9th, 2019 – Waltham, MA
PLA Welcome (Kathleen O’Sullivan-Fortin and Greg Benton)
Community Call Update (Kathleen O’Sullivan-Fortin)
LCN Update and Clinical Practice Guidelines (Jacque Waggoner)
Understanding Urinary and Bowel Dysfunction in Adults With ALD (Camille Corre)
Movement Disorder Studies in Women With ALD (Melanie Supnet)
Symptomatic Therapy and Rehabilitation (Brian Wishart)
ALD Connect Ambassador Award Presentation (Kathleen O’Sullivan-Fortin)
Portrait of a Family With ALD
Supporting the ALD Family (Kathryn Weagle)
Update on Stanford Trials (Keith Van Haren)
2020 ALD Family Retreat
Adrenal Insufficiency It’s Not Just My Summer Tan
Clinical Panel
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