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2023 ALD Connect Annual Meeting and Patient Learning Academy
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About Us
Mission
Board of Directors
The Myelin Project
Our Partners
What is ALD?
ALD Centers and Experts
Newborn Screening/Asymptomatic
Adrenal Insufficiency
Cerebral ALD
Adrenomyeloneuropathy (AMN)
Symptomatic Women
Clinical Trials & Research
Clinical Trials
Emerging Investigators
The Grey Zone
Laboratories
Publications
Resources
Annual Meetings and Patient Learning Academies
EL-PFDD
Financial Assistance
Frequently Asked Questions
Peer Mentor Program
Webinars
Get Involved
2023 ALD Connect Annual Meeting and Patient Learning Academy
Advocate
ALD Landscape Project
Community Calendar
Community Calls
Community Directory
News
Contact Us
Patient Learning Academy 2018
November 2nd and 3rd, 2018 – Philadelphia, PA
Welcome (Amber Salzman)
Overview & Discussion of ALD Biology (Florian Eichler)
Experimental Treatment & Decision-Making (Ben Lenail)
Endocrine Management Across a Lifetime (Jeff Roizen)
Positive Exposure (Rick Guidotti)
Clinical Trial Updates (Keith Van Haren)
North Carolina Newborn Screening Pilot Program Results (Jennifer Taylor)
US ALD Newborn Screening Update (Elisa Seeger)
It Takes An Army to Make Change (Dean Suhr)
Living as a Man With ALD (Chris Kaag)
Women With ALD: Not Just Carriers (Taylor Kane)
Mental Health Impact: Depression & Suicide (Emma Hayes)
Transitioning Care – From Pediatrics to Adult (Catherine Beeker)
ALD Life: The UK Experience (Karen Harrison)
Urogynecologic Considerations in ALD (Kristine Whitmore)
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