Patient Learning Academy 2018
November 2nd and 3rd, 2018 – Philadelphia, PA
Welcome (Amber Salzman)
Overview & Discussion of ALD Biology (Florian Eichler)
Experimental Treatment & Decision-Making (Ben Lenail)
Endocrine Management Across a Lifetime (Jeff Roizen)
Positive Exposure (Rick Guidotti)
Clinical Trial Updates (Keith Van Haren)
North Carolina Newborn Screening Pilot Program Results (Jennifer Taylor)
US ALD Newborn Screening Update (Elisa Seeger)
It Takes An Army to Make Change (Dean Suhr)
Living as a Man With ALD (Chris Kaag)
Women With ALD: Not Just Carriers (Taylor Kane)
Mental Health Impact: Depression & Suicide (Emma Hayes)
Transitioning Care – From Pediatrics to Adult (Catherine Beeker)
ALD Life: The UK Experience (Karen Harrison)
Urogynecologic Considerations in ALD (Kristine Whitmore)
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