Patient Learning Academy 2017
November 17th and 18th, 2017 – Bethesda, MD
Progress, Clinical Trials, and Industry Recap (Florian Eichler)
Cellular Therapy for Cerebral ALD (Christine Duncan)
ALD & AMN Patient Experiences (Ben Lenail)
Physical Therapy and the Benefits of Exercise (Jennifer Keller and Christopher Joseph)
Advancing Quality of Life for Advanced Cerebral AMN (Bob Wyborn)
Taking Care of a Newborn With ALD (Tara Meady)
Data Sharing: The Patient’s Voice Makes A Difference (Alex Sherman)
Fighting the Odds, Transformative Patient Experiences (Kyle Bryant)
Young ALD Carriers (Taylor Kane)
Endocrine Issues and Their Management in ALD/AMN (Aniket Sidhaye)
Closing Remarks (Kathleen O’Sullivan-Fortin)
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