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ALD Connect Annual Meeting & Patient Learning Academy 2021
ALD Connect Annual Meeting & Patient Learning Academy 2021
View video recordings from the 2021 ALD Connect Annual Meeting & Patient Learning Academy.
ALD Connect Annual Meeting 2021
Welcome: Updates on ALD and AMN
Dr. Stephan Kemp
Consensus on Clinical Care Guidelines
Dr. Marc Engelen
HSCT in Adulthood Leukodystrophies
Dr. Wolfgang Koehler
Human Brain Organoids for ALD
Roberto Montoro, Amsterdam University Medical Centers
Moderator: Dr. Stephan Kemp
From Recipient to Donor, Musings on the Brain
Dr. Troy Lund
Characterizing the First Mouse Model for Inflammatory Demyelinating Brain Lesions in X-linked ALD
Dr. Ezzat Hashemi
Moderator: Dr. Keith Van Haren
Patient Panel
Using Neural Networks to Predict AMN Disease Trajectory
Dr. Bela Turk
Industry Panel
ALD Connect Awards
Patient Learning Academy 2021
PLA Welcome (Kathleen O’Sullivan-Fortin)
Gene Therapy Panel
Assessing Cerebral Visual Impairment (CVI) in Adrenoleukodystrophy (Dr. Lotfi Merabet and Melissa Bambery)
Primary Adrenal Insufficiency in ALD (Dr. Nicholas Tritos and Dr. Molly Regelmann)
Pain, Discomfort, and Sensory Changes in ALD (Dr. Florian Eichler and Kathleen O'Sullivan-Fortin)
Navigating the Financial Aspects of ALD
ALD 2021: Closing Remarks (Dr. Florian Eichler and Kathleen O'Sullivan-Fortin)
Useful Links
Annual Meeting and Patient Learning Academy
ALD Connect Annual Meeting & Patient Learning Academy 2022
ALD Connect Annual Meeting & Patient Learning Academy 2020
