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ALD Connect Annual Meeting & Patient Learning Academy 2020
ALD Connect Annual Meeting & Patient Learning Academy 2020
View video recordings from the 2020 ALD Connect Annual Meeting & Patient Learning Academy.
Introduction to the 2020 ALD Connect Annual Meeting and Patient Learning Academy
Kathleen O'Sullivan-Fortin
ALD Connect in 2020 - A Year Like No Other
Dr. Florian Eichler
Results of a Pilot Study of Vitamin D in ALD Boys
Dr. Keith Van Haren
New Insights into Cerebral ALD
Dr. Joshua Bonkowsky
ALD Newborn Screening Pilot Project
Dr. Eric Mallack
Metabolic Rerouting of Very-Long-Chain Fatty Acid Synthesis Impacts ALD
Dr. Stephan Kemp
Patient Panel
Industry Panel
Young Investigator Panel
Multi-Omic Approach to Identify Phenotypic Modifiers Underlying Cerebral Demyelination in X-Linked ALD
Phillip Richmond
Therapeutic Efficacy of PXL770 for ALD
Dr. Jaspreet Singh
Gene Correction in HSCs Restores White Matter Microvascular Function in cALD
Dr. Patricia Musolino
Newborn Screening
Miranda McAuliffe
ALD Connect Awards
Social Hour: 2 Truths and a Lie
Jon Kuderer
Welcome
Kathleen O'Sullivan-Fortin
ALD Family Weekend: Building Community
Nic Adler
More than a Diagnosis: Living with ALD and the Mental Health Impact
Johanna Bond, LMHC
Endocrine Considerations in Adrenoleukodystrophy
Dr. Molly Regelmann
Genetic Counseling
Functional Considerations in Symptomatic Myelopathy Associated with ALD
Dr. Brian Wishart
Women with ALD: Restless Legs Syndrome and Movement Disorders
Education Supports for ALD Boys: IEPs AND 504 Plans
Nicole Metsistso Mazer, Esq.
Post-Transplant
Planning for the Future: Financial Planning
John Nadworny, CFP®, CTFA
Grassroots Fundraising
Ask the Experts
Useful Links
Annual Meeting and Patient Learning Academy
ALD Connect Annual Meeting & Patient Learning Academy 2022
ALD Connect Annual Meeting & Patient Learning Academy 2021
