ALD Connect

Annual Meeting & Patient Learning Academy

The ALD Connect Annual Meeting and Patient Learning Academy is the cornerstone of our community, bringing together patients, caregivers, researchers, clinicians, and industry leaders. It is more than just a meeting—it’s an opportunity to connect, learn, and advance ALD research and clinical care.

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About the ALD Connect Annual Meeting & Patient Learning Academy

Each year, the ALD Connect Annual Meeting and Patient Learning Academy gathers the entire community for the world’s largest ALD-specific conference. It is a two-day event that offers both in-person and virtual participation. This unique format allows attendees to engage in meaningful discussions, gain insights from leading experts, and build lasting connections, whether they’re joining us in person or online.

Scientific Session (Friday): Our event kicks off with a day dedicated to cutting-edge research. The Scientific Session is where the brightest minds in ALD come together to share the latest findings, discuss ongoing studies, and explore new directions in treatment and care. This session is essential for anyone interested in the scientific advancements shaping the future of ALD.

Patient Learning Academy (Saturday): Day two is all about empowering patients and families. The Patient Learning Academy offers expert-led presentations, breakout sessions, and Q&A sessions designed to provide practical knowledge and support. Whether you’re newly diagnosed or have been living with ALD for years, this day is packed with valuable information.

The Research Fair is your gateway to exploring ongoing and upcoming research projects that aim to transform the landscape of ALD. This event features displays from various research teams and institutions, showcasing their work and potential breakthroughs. Engage directly with researchers, learn about clinical trials, and find out how you can get involved in advancing ALD research.

Join us at the Poster Session to delve into the latest advancements and research findings in ALD. This interactive segment allows attendees to engage with a wide range of scientific posters, presented by leading researchers and practitioners. It’s an excellent opportunity to gain insights into emerging trends, ask questions, and discuss research outcomes with the experts driving innovation in the field.

Don’t miss the Auction! This event features a diverse array of auction items, offering everything from gift cards to unique experiences. By participating, you not only have a chance to win exciting prizes but also support our mission. All proceeds from the auction go directly towards funding essential programs and initiatives that benefit our community.

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Why Attend?

Have questions or need more information? Reach out to our team and we’ll be happy to assist you.

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Learn from the Experts

Gain access to the latest research updates directly from the scientists and clinicians who are leading the field. Our expert speakers provide deep insights into new treatments, ongoing clinical trials, and emerging therapies.

Connect with the Community

The Annual Meeting and Patient Learning Academy is a rare opportunity to meet face-to-face with others who understand the journey. Whether you’re a patient, caregiver, or healthcare professional, you’ll find a welcoming community ready to share experiences, offer support, and build connections that last beyond the event.

Network and Collaborate

For researchers and industry representatives, this event is an unparalleled networking opportunity. Forge new collaborations, discuss potential partnerships, and explore ways to advance ALD research and care together.

Flexible Participation

With both in-person and virtual options, the Annual Meeting is accessible to everyone. Join us in person to experience the energy of the event, or participate online from the comfort of your home.

Get Involved

Interested in giving a research update, presenting a poster, donating an auction item, volunteering, sponsoring, or speaking at the event? We welcome your involvement!

View Recordings

The recordings from our Annual Meeting are organized by year:

  • 2024 – Washington, D.C.
  • 2023 – Houston, Texas
  • 2022 – Baltimore, Maryland
  • 2021 – Virtual
  • 2020 – Virtual
  • 2019 – Boston, Massachusetts
  • 2018 – Philadelphia, Pennsylvania
  • 2017 – Bethesda, Maryland