It is essential that we understand where patients are being diagnosed and who is taking care of them to ensure that all ALD patients and families receive quality care. We want to gather patient and family perspectives to better understand resources that the ALD community needs.
ALD Connect is committed to understanding the full scope of the ALD experience—from diagnosis to treatment and beyond. The ALD Landscape Project serves as a vital tool in this mission, helping us:
- Identify Needs: By mapping patient experiences and care pathways, we can pinpoint where support is most needed.
- Influence Strategic Planning: Data collected through this project informs our strategic priorities, ensuring that we utilize our resources to address the most pressing concerns of the ALD community.
- Support Advocacy: The insights gained help shape advocacy efforts, driving important changes that benefit patients and families.
The ALD Landscape Project is more than just a data collection effort—it’s a movement driven by the ALD community. Your participation not only helps us understand the current landscape but also paves the way for a brighter future. Join us today and be part of this important work.
