Forgot Password? – ALD Connect

Skip to content

ALD Connect

About Us
Contact Us
What is ALD?
Newly Diagnosed
- ALD Experts
- Frequently Asked Questions
Research
Resources
Get Involved
News & Events
- News
- Events
Donate
- Program Descriptions

About Us
Contact Us
What is ALD?
Newly Diagnosed
- ALD Experts
- Frequently Asked Questions
Research
Resources
Get Involved
News & Events
- News
- Events
Donate
- Program Descriptions

Forgot Password?

Email

Login

Create account

BLOG CATEGORIES

Uncategorized(22)

RECENT COMMENTS

RECENT POSTS

Utah newborns now screened for X-linked adrenoleukodystrophy
October 1, 2020
Saskatoon family looking for provincial funding to cover son’s U.S. medical treatment for disease
September 2, 2020
bluebird bio Presents New Results from Clinical Development Program of elivaldogene autotemcel (eli-cel, Lenti-D™) Gene Therapy for Cerebral Adrenoleukodystrophy (CALD), Including Updated Long-Term Data, at the 46th Annual Meeting of the EBMT
August 29, 2020
Running miles for ALD: Grafton father’s mission to fund research
August 14, 2020

Contact Us

Call Us
(833) 525-3266
Mail
info@aldconnect.org
Address
ALD Connect
35 Village Road Suite 100 #353306
Middleton, MA 01949, USA

Latest News

Utah newborns now screened for X-linked adrenoleukodystrophy
October 1, 2020
Saskatoon family looking for provincial funding to cover son’s U.S. medical treatment for disease
September 2, 2020
bluebird bio Presents New Results from Clinical Development Program of elivaldogene autotemcel (eli-cel, Lenti-D™) Gene Therapy for Cerebral Adrenoleukodystrophy (CALD), Including Updated Long-Term Data, at the 46th Annual Meeting of the EBMT
August 29, 2020
Running miles for ALD: Grafton father’s mission to fund research
August 14, 2020

Instagram

Presentation Spotlight: Dr. Keith Van Haren will p

Presentation Spotlight: Dr. Keith Van Haren will present the results of his pilot study of vitamin D in ALD boys. We are anxiously awaiting this update!

Register now for our virtual Annual Meeting and Patient Learning Academy to join the online live stream, November 13-14 at aldconnect.org (click our bio link).

#aldconnect #ald #adrenoleukodystrophy #amn #adrenomyeloneuropathy #newbornscreening #leukodystrophy #leukodystrophyawareness #stopald #cureald #aldawareness #raredisease #womenwithald

Two weeks! #ALDConnect strives to bring all perspe

Two weeks! #ALDConnect strives to bring all perspectives together. We hope to see members from all areas of the ALD community at our Annual Meeting and Patient Learning Academy, November 13-14. Register at aldconnect.org (click our bio link).

FREE for Patients, Caregivers, Advocates, Physicians/Providers, Scientists, and Researchers. ($75 for Industry)

#aldconnect #ald #adrenoleukodystrophy #amn #adrenomyeloneuropathy #newbornscreening #leukodystrophy #leukodystrophyawareness #stopald #cureald #aldawareness #raredisease #womenwithald

Presentation Spotlight: 2020 has been a year of un

Presentation Spotlight: 2020 has been a year of unprecedented change. Many areas of our ALD community were impacted by COVID-19: Patient travel was heavily restricted, clinical trials faced delays, and labs were forced to temporarily close.

Yet the flexibility of patients, adaptation of trial protocols, and perseverance of researchers allowed for many studies to make progress through remote visits, virtual assessments, and modified travel plans.

Please join us to hear Dr. Florian Eichler address these issues and share other ALD and AMN updates in his welcome to our Annual Meeting and Patient Learning Academy on 11/13. Register now at aldconnect.org. Link in bio.

#aldconnect #ald #adrenoleukodystrophy #amn #adrenomyeloneuropathy #newbornscreening #leukodystrophy #leukodystrophyawareness #stopald #cureald #aldawareness #raredisease #womenwithald

Presentation Spotlight: On 11/13, Dr. Troy Lund wi

Presentation Spotlight: On 11/13, Dr. Troy Lund will present promising translational research results that show resolution of gadolinium enhancement in cerebral ALD without a transplant.

To join the online live stream, register for the Annual Meeting and Patient Learning Academy. Link in bio.

#aldconnect #ald #adrenoleukodystrophy #amn #adrenomyeloneuropathy #newbornscreening #leukodystrophy #leukodystrophyawareness #stopald #cureald #aldawareness #raredisease #womenwithald

Register now to be part of the largest internation

Register now to be part of the largest international conference focused solely on adrenoleukodystrophy. Link in bio.

ALD Connect's Annual Meeting and Patient Learning Academy brings all ALD stakeholders together—patients, caregivers, advocates, clinicians, researchers, and pharmaceutical companies—to present the latest developments in ALD research, clinical trial information, and patient perspectives.

FREE for Patients, Caregivers, Advocates, Physicians/Providers, Scientists, and Researchers. ($75 for Industry)

Please share to help us spread the word!

#aldconnect #ald #adrenoleukodystrophy #amn #adrenomyeloneuropathy #newbornscreening #nbs #leukodystrophy #leukodystrophyawareness #stopald #cureald #aldawareness #raredisease #womenwithald

Please consider registering for one of our upcomin

Please consider registering for one of our upcoming Community Calls. We would love to see some new faces and hear feedback from more patients and families.

Link in bio to register.

#aldconnect #ald #adrenoleukodystrophy #amn #adrenomyeloneuropathy

Load More... Follow on Instagram

© ALD Connect | Website Design & Website Development by Surf Your Name.