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EL-PFDD
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About Us
What is ALD?
Clinical Trials & Research
EL-PFDD
Resources
Get Involved
News
Contact Us

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RECENT COMMENTS

RECENT POSTS

bluebird bio Receives FDA Accelerated Approval for SKYSONA® Gene Therapy for Early, Active Cerebral Adrenoleukodystrophy (CALD)
September 17, 2022
Minoryx‘s Marketing Authorization Application for its lead candidate leriglitazone validated by EMA for orphan indication X-linked Adrenoleukodystrophy (X-ALD)
September 14, 2022
ALD Family Weekend
June 23, 2022
FDA Advisory Committee Unanimously Endorses eli-cel Gene Therapy for Cerebral Adrenoleukodystrophy
June 9, 2022

Contact Us

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(833) 525-3266
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[email protected]
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ALD Connect
35 Village Road Suite 100 #353306
Middleton, MA 01949, USA

Latest News

bluebird bio Receives FDA Accelerated Approval for SKYSONA® Gene Therapy for Early, Active Cerebral Adrenoleukodystrophy (CALD)
September 17, 2022
Minoryx‘s Marketing Authorization Application for its lead candidate leriglitazone validated by EMA for orphan indication X-linked Adrenoleukodystrophy (X-ALD)
September 14, 2022
ALD Family Weekend
June 23, 2022
FDA Advisory Committee Unanimously Endorses eli-cel Gene Therapy for Cerebral Adrenoleukodystrophy
June 9, 2022

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We hope to see you in Baltimore at our 2022 Annual

We hope to see you in Baltimore at our 2022 Annual Meeting and Patient Learning Academy!

Save the dates - November 11-12, 2022!

Natalie Grant, Clinical Research Coordinator at Ma

Natalie Grant, Clinical Research Coordinator at Massachusetts General Hospital, presented, "Neurological Disease Burden in Females with X-Linked Adrenoleukodystrophy" at the 2022 American Academy of Neurology meeting.

Thank you for acknowledging that women have symptoms! Visit the “News” section of our website to see a bigger image of the poster!

We are thrilled to introduce our newest Peer Mento

We are thrilled to introduce our newest Peer Mentor! Christie Higuera is an ALD patient and the mom of two children with ALD -Rainey (4) and Zoli (18 months). Her family lives in Massachusetts and found out about ALD when Zoli was diagnosed through the newborn screen. She is eager to support others in the ALD community who need a compassionate sounding board and resource.

Click the link in our bio to learn more about our Peer Mentor Program and apply for a mentor.

We are thrilled to announce a funding opportunity

We are thrilled to announce a funding opportunity for emerging investigators. We hope to introduce graduate students, medical students, and/or post-doctoral students to our field and ALD community and foster their continued-learning.

ALD Connect strives to engage the next generation of researchers and accelerate ALD research. This new grant opportunity helps us achieve both goals.

We are grateful to our donors who made this possible, and we look forward to growing this program! Please share with anyone who may be interested in this opportunity!

*link in bio*

Happy Mother’s Day to all the moms in our ALD co

Happy Mother’s Day to all the moms in our ALD community. We are grateful for you. 💙

Time flies when you're working hard to make a diff

Time flies when you're working hard to make a difference for the ALD community! Check out our Annual Report for a great summary of all we accomplished last year. We are off to a great start in 2022, with lots more progress to come!

*link in bio*

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