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About Us
Contact Us
What is ALD?
Newly Diagnosed
- ALD Experts
- Frequently Asked Questions
Research
Resources
Get Involved
News & Events
- News
- Events
Donate
- Program Descriptions

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RECENT COMMENTS

RECENT POSTS

SwanBio Therapeutics Announces Series A Expansion
April 26, 2020
April 2020 Community Calls
April 23, 2020
ALD and COVID-19: Frequently Asked Questions
April 1, 2020
COVID-19
March 18, 2020

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(833) 525-3266
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info@aldconnect.org
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ALD Connect
35 Village Road Suite 100 #353306
Middleton, MA 01949, USA

Latest News

SwanBio Therapeutics Announces Series A Expansion
April 26, 2020
April 2020 Community Calls
April 23, 2020
ALD and COVID-19: Frequently Asked Questions
April 1, 2020
COVID-19
March 18, 2020

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Leave us your best tip, and then register for our

Leave us your best tip, and then register for our virtual 2020 ALD Connect Annual Meeting and Patient Learning Academy to hear more from our patient panels!

#adrenoleukodystrophy #ald #adrenomyeloneuropathy #amn #newbornscreening #nbs

Please join us for our virtual 2020 ALD Connect An

Please join us for our virtual 2020 ALD Connect Annual Meeting and Patient Learning Academy on November 13 and 14, 2020.

Link in bio to register!

Watch for panel and presenter announcements soon!

#adrenoleukodystrophy #ald #adrenomyeloneuropathy #newbornscreening

Join us tomorrow night! Link in our bio to registe

Join us tomorrow night! Link in our bio to register.

ALD Connect PMP Mentor of the Week: Megan Grew Pim

ALD Connect PMP Mentor of the Week: Megan Grew Pimentel
Please reach out to us at admin@aldconnect.org if you would like to receive a mentor!
“Right after I got married, I discovered that I had ALD through DNA testing. Initially, I was devastated as my husband and I were looking forward to starting a family of our own. Fortunately, I found out about IVF/PGD and was able to have healthy twins who are free of this cruel disease. At the time, I did not know anyone who had gone through this process which was very isolating. I am honored to be a part of the Peer Mentor Program to provide support to those who are on this journey or considering it.”

Join us tonight and tell your friends! Link in our

Join us tonight and tell your friends! Link in our bio to register.

ALD Connect Peer Mentor Program Mentor(s) of the w

ALD Connect Peer Mentor Program Mentor(s) of the week: Bobby & Eve Lapin "Ever since two of our three young sons were diagnosed with the cerebral form of ALD almost 20 years ago, we have wanted to do whatever we can to help other similarly-situated families by sharing our perspective on the lessons we learned from that journey in any way which they might find to be helpful. We therefore feel privileged to be participating in ALD Connect’s Peer Mentoring Program and look forward to connecting with other parents who, regretfully, find themselves on this same path." If you would like more information on this program or would like to be matched with a mentor, please email us at admin@aldconnect.org

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