For families, partners, and other caregivers, who want a safe place to discuss the stresses, challenges, and rewards of providing care for adults with Leukodystrophies. The discussion will be led by Margaret Halter and Roger Locy.

Being a caregiver can feel a lot like being a lone ranger. We know other caregivers are “out there,” but sometimes our day-to-day lives do not allow us to meet with others who are facing the same challenges we face.

Here is your opportunity to meet with other adults and share the challenges and the bright moments in our day-to-day journey, as we care for an adult with a Leukodystrophy.

This meeting will not be recorded, and the information collected below will not be shared outside of the ULF. The information we ask for is simply to give us an idea of where our participants are from geographically. If we see an abundance of one leukodystrophy type or caregiver type participating, we will use that information to guide what specific kinds of support groups we host in the future.

Register here: https://us02web.zoom.us/meeting/register/tZMkceqsrTsjGtTtBXXyNENePL7MwgO-dSan