Every year, ALD Connect hosts an Annual Meeting that brings all ALD stakeholders together—patients, caregivers, patient advocates, clinician/researchers, and pharmaceutical companies—to present the latest developments in ALD research, clinical trial information, and patient perspectives, and to discuss how we can work together to advance new therapies with the goal of curing ALD.
ALD Connect Annual
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ALD Connect Annual Meeting 2019
November 8-9, 2019 – Waltham, MA
Welcome: Myelin Project and ALD Updates (Florian Eichler)
Big Data & Little Fish (Josh Bonkowsky)
SCAN: Screening for ALD in the Netherlands (Stephan Kemp)
ALD Newborn Screening – Progress and Challenges (Elisa Seeger)
Newborn Bloodspot Screening: A Global Perspective (Bob Wyborn)
GLIA-CTN Global Leukodystrophy Initiative – Clinical Trials Network (Adeline Vanderver)