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About Us
Mission
Board of Directors
The Myelin Project
Our Partners
What is ALD?
ALD Centers and Experts
Newborn Screening/Asymptomatic
Adrenal Insufficiency
Cerebral ALD
Adrenomyeloneuropathy (AMN)
Symptomatic Women
Clinical Trials & Research
Clinical Trials
Emerging Investigators
The Grey Zone
Laboratories
Publications
Resources
Annual Meetings and Patient Learning Academies
EL-PFDD
Financial Assistance
Frequently Asked Questions
Mental Health
Peer Mentor Program
Webinars
Get Involved
Advocate
ALD Landscape Project
Community Calendar
Community Calls
Community Directory
News
Contact Us
ALD Connect Annual Meeting 2019
November 8-9, 2019 – Waltham, MA
Welcome: Myelin Project and ALD Updates (Florian Eichler)
Big Data & Little Fish (Josh Bonkowsky)
SCAN: Screening for ALD in the Netherlands (Stephan Kemp)
ALD Newborn Screening – Progress and Challenges (Elisa Seeger)
Newborn Bloodspot Screening: A Global Perspective (Bob Wyborn)
GLIA-CTN Global Leukodystrophy Initiative – Clinical Trials Network (Adeline Vanderver)
Ask an Expert: Patient Panel (Ben Lenail)
ALD Connect Awards
Engraftment Disease Remission & Clinical Trial Update (Troy Lund)
Early Lesion Growth Analysis in Cerebral ALD (Erik Mallack)
Pilot Scale Study of Human Plasma Identifies Potential Biomarkers to Predict X ALD (Jaspreet Singh)
Generation of ALD Brain Organoids as a Preclinical Model (Vivi Heine)
Update on Dendrimer Therapy Organoids as a Preclinical Model (Ali Fatemi)
Biomarker Discovery for Disease Onset or Therapeutic Intervention Studies (Yorrick Jaspers)
Industry Panel (Amber Salzman)
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