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About Us
Mission
Board of Directors
The Myelin Project
Our Partners
What is ALD?
ALD Centers and Experts
Newborn Screening/Asymptomatic
Adrenal Insufficiency
Cerebral ALD
Adrenomyeloneuropathy (AMN)
Symptomatic Women
Clinical Trials & Research
Clinical Trials
Emerging Investigators
The Grey Zone
Laboratories
Publications
Resources
Annual Meetings and Patient Learning Academies
EL-PFDD
Financial Assistance
Frequently Asked Questions
Mental Health
Peer Mentor Program
Webinars
Get Involved
Advocate
ALD Landscape Project
Community Calendar
Community Calls
Community Directory
News
Contact Us
ALD Connect Annual Meeting 2018
November 2nd and 3rd, 2018 – Philadelphia, PA
Welcome: Updates on ALD and AMN (Florian Eichler)
Centers of Excellence Standards & Care Management (Adeline Vanverver)
LCN Clinical Practice Guidelines (Anna Grantham)
Newborn Screening Response and Long-Term Monitoring (Laura Adang)
Imaging Advances in AMN: Spinal Cord (Bela Turk)
Modeling Cerebral ALD Lesion Growth (Eric Mallack)
Expert Consensus Guidelines – A Transatlantic Approach (Marc Engelen)
Progress in Gene Therapy for ALD (Christine Duncan)
Risk & Rewards Stabilizing ALD With Transplant (Troy Lund)
Cord Blood Transplantation for Children (Vinod Prasad)
Understanding Dysfunction of the Blood-Brain Barrier in ALD (Patricia Musolino, Alexander Lenail)
Industry Panel (Cleland/Opheris, DeWitt/Deuterx-Poxel, Fortin/bluebird bio, Meya/Minoryx, Cromwell/Sanofi Genzyme)
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