ALD Connect Annual Meeting 2017
November 17th and 18th, 2017 – Bethesda, MD
Welcome: Introductions and Goals for 2017 Annual Meeting (Ali Fatemi)
The Therapeutic Landscape of ALD and AMN (Florian Eichler)
Clinical Trial Readiness for Rare Neurological Diseases: FDA and NIH Perspective (Devanand Jillapalli (FDA) and Jill Morris (NIH)
The ALD Database and the Need for Translational Metabolism in Newborn Screening (Stephan Kemp)
Newborn Screening for ALD (Ann Moser and Elisa Seeger)
2017 ALD Connect Awards (Kailey Walsh)
Industry Panel: Updates on Trial Plans
Outreach and Advocacy for ALD (Jean Kelly)
Learning from Others: Patient Engagement Across Rare Disease (Ronald Bartek and Margie Frazier)
Group Brainstorm and Wish List for 2018 (Ben Lenail)
