Our Peer Mentor Program is designed to provide support and guidance to individuals and families affected by adrenoleukodystrophy through the experience and empathy of those who have navigated similar challenges. The program pairs newly diagnosed patients and their families with experienced mentors who offer personalized advice, emotional support, and practical information about living with ALD.
By connecting individuals with mentors who understand their journey, the program helps build a sense of community, alleviate feelings of isolation, and provide valuable insights that can make managing ALD more manageable and empowering.
Our mentors are committed to forming relationships based on respect, confidentiality, and mutual understanding. The primary goal of the Peer Mentor Program is to enhance collaboration and accessibility within the ALD Connect community, ensuring that those affected by ALD/AMN have the support they need from someone who truly understands their journey.
We have mentors from all areas of the ALD community.
We are proud to partner with Remember the Girls to offer our Peer Mentor Program to young adults and women with ALD.
ALD Connect is here to support patients, families, and healthcare providers navigating the challenges of adrenoleukodystrophy. Whether you have questions, need guidance, or want to learn more about how we can help, we encourage you to get in touch.
