The Industry Advisory Council is a critical component of ALD Connect’s mission to advance adrenoleukodystrophy research and improve patient outcomes. ALD Connect provides a collaborative environment where the collective knowledge and experience of industry representatives and ALD experts can be leveraged to accelerate research and advance new treatments.
We create a space for candid discussions about the challenges and opportunities in ALD research, enabling participants to share their unique perspectives. By working together, we ensure that our efforts are focused on the most pressing needs of the ALD community, from developing new therapies to improving access to care. The Industry Advisory Council meets every quarter to discuss ideas and identify key areas for collaboration, aiming to push the boundaries of what’s possible in ALD treatment and management.
The Industry Advisory Council is not just a meeting—it’s a dynamic forum where collaboration leads to tangible results. By pooling resources and expertise, we aim to fast-track the development of new therapies and technologies. Every meeting starts with a Patient Perspective, and our discussions are centered on the needs of ALD patients and their families. We explore ways to enhance the quality of care, improve access to treatments, and provide better support for those affected by ALD. The council encourages the exploration of new ideas, cutting-edge technologies, and novel approaches to ALD research and care. We believe that by thinking creatively and collaborating across sectors, we can unlock new possibilities for the ALD community.
ALD Connect encourages community-wide research that addresses key challenges in ALD. The Industry Advisory Council works to identify and prioritize research initiatives that have the potential to lead to significant advancements in ALD treatment. Through collaboration, we have contributed to the development and testing of new therapies that offer hope to patients and families affected by ALD.
The success of the Industry Advisory Council depends on the active participation and commitment of its members. We invite industry representatives and ALD experts to join us in this important work. If you’re interested in learning more about the Industry Advisory Council or would like to get involved, please email us at [email protected].
