Statement from the ALD Connect Board of Directors

To Our ALD Community

At ALD Connect, we are committed to improving health outcomes for those affected by ALD by bringing together patients, families, clinicians, researchers, advocates, and industry partners.

We recognize that policy changes at the national level can create uncertainty, potentially affecting patient care, research funding, and the development of new therapies.

Our focus remains the same: ensuring access to quality care, supporting critical research, and fostering collaboration to advance treatments. Scientific progress depends on strong research infrastructure, open data sharing, and the dedication of the medical and scientific communities. We will continue to advocate for the resources and partnerships needed to drive meaningful advancements in ALD. No matter the challenges ahead, we stand by our mission and our community.

Together, we will keep moving forward.

-ALD Connect Board of Directors