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My son Lucas was diagnosed through newborn screen in CA in 2017. He is asymptomatic. I also have ALD and am asymptomatic.
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I am a carrier for ALD. I have AMN symptoms. I lost a brother with ALD, and I have another brother with AMN. I terminated my first pregnancy due to my baby having ALD. This is when I first found out I was a carrier at age 32.
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I am the mother of two boys with ALD. Patrick who is now 6 years old and Gavin who is 11. Patrick was diagnosed at birth through NBS and subsequently, Gavin was diagnosed.
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40-year old female with ALD, one son and one daughter with asymtomatic ALD
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I have a 2 year old son (born 6/12/18) who was diagnosed with ALD via newborn screening in MN. This was the first our family knew of this disease. My (at the time) 4-year-old nephew was also diagnosed with ALD as a result of my son’s newborn screening. Both boys are being monitored at the University of MN.
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My name’s Florianna. I’m a 25 year old new mother to a 3 month old named Mateo. He was recently diagnosed with ALD. I’m looking for advice, knowledge, support. We’ve never heard of ALD until about 2 months ago so anyone reaching out to us is appreciated.
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ABCD1 positive, asymptomatic male, 66 years old, lives in Montana
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I am a mum to a CALD child of 12 years old in 2020
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I am a symptomatic carrier of ALD, my son had a successful BMT for cALD in 2016 , my father passed away of AMN in 1996.
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I am a 60 y.o. women carrier with symptoms. I had a brother who died at age 42 from ALD