|National Organization for Rare Diseases (NORD)
||The National Organization for Rare Disorders (NORD) is a non-profit federation of voluntary health organizations dedicated to helping people with rare or orphan diseases. NORD is committed to identifying, treating and curing rare disorders through education, advocacy, research and service.
||EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 606 rare disease patient organisations in 56 countries.
We are the voice of 30 million people affected by rare diseases throughout Europe.
|Global Genes: RARE Project
||The Global Genes Project is one of the leading rare and genetic disease patient advocacy organizations in the world. The non-profit organization is led by Team R.A.R.E. and promotes the needs of the rare and genetic disease community under a unifying symbol of hope the Blue Denim Genes Ribbon. What began as a grassroots movement in 2009 with a few rare disease parent advocates and foundations has grown to over 500 global organizations.
|Canadian Organization for Rare Diseases (CORD)
||CORD is Canada’s national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.