ALD Connect Webinars

Join a live, interactive webinar— a seminar accessed through the internet—that is free and can be accessed anywhere in the world. Experts from varying fields take questions and discuss a broad range of topics requested by ALD patients and their families. Explore a few selected previous webinars or search and subscribe to our YouTube channel.

Introduction to Adrenoleukodystrophy

Presented by Dr. Keith VanHaren for ALD Connect.

I just got diagnosed, now what?

Presented by Dr. Keith VanHaren for ALD Connect.
*Please note- The link to the ALD guidelines that was shown on a couple of the slides is incorrect. The correct link is

Genetics & Reproductive Options

Presented by Dr. Leila Jamal for ALD Connect.

Newborn Screening & Implementation

Presented by Amber Salzman and Elisa Seeger for ALD Connect.

ALD #SAVETHEBOYS Summer Campaign

Understanding Walking

Presented by Dr. Kathleen Zackowski for ALD Connect.

Clinical Trials for ALD

Presented by Dr. Stephan Kemp for ALD Connect.

The Invisible Family Member: supporting siblings through family medical illness.

Presented by Dr. Katie Weagle for ALD Connect.

Reflexion Health – The Vera

Presented by Reflexion Health for ALD Connect.

Bone Marrow Transplantation in ALD

Presented by Dr. Troy Lund, M.D., Ph.D. for ALD Connect.

Women with ALD

Presented by Dr. Marc Engelen, M.D., Ph.D. for ALD Connect.