Please join us for a community call on Monday, March 22nd at 7 PM Eastern Time for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehoxewzi558411a6 **NOTE: Please do not register for this call unless you are a…
Please join us for a community call facilitated by Tim Maguire, Ken Dieffenbach, and Justin D’Agostino on Tuesday, March 23rd at 7 PM EST for AMN men. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehoxexgo1755e741 **NOTE: Please do not register for this call unless you are…
For families, partners, and other caregivers, who want a safe place to discuss the stresses, challenges, and rewards of providing care for adults with Leukodystrophies. The discussion will be led by Margaret Halter and Roger Locy. Being a caregiver can feel a lot like being a lone ranger. We know other caregivers are “out there,”…
Our goal is to provide tangible resources to families receiving this diagnosis. We will begin this effort by focusing on families receiving an ALD diagnosis at birth, but are welcoming all members of the ALD community to offer their valuable input. Click here to register: https://www.flipcause.com/secure/cause_pdetails/MTExMzk1
Please join us for a community call facilitated by Tara Meady, Suzanne Flynn, and Kathleen O’Sullivan Fortin on Wednesday, March 31st at 7:30 PM Eastern Time for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehoxfi0nbf0bb896 **NOTE: Please do not…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Tuesday, April 6th, 2021 at 8 PM Eastern Time for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehoxfig4cf34398e **NOTE: Please do not register for this call unless…
Please join us for a community call on Monday, April 26th at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. This call will include a guest appearance by neurologist Dr. Ali Fatemi from Kennedy Krieger Institute who will answer questions. Please reach out to [email protected] if you have any questions.…
Please join us for a community call facilitated by Tim Maguire, Ken Dieffenbach, and Justin D’Agostino on Tuesday, April 27th at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehva1o82cae81d1f **NOTE: Please do not register for this call unless you…
Please join us for a community call facilitated by Tara Meady, Suzanne Flynn, and Kathleen O’Sullivan Fortin on Wednesday, April 28th at 7:30 PM Eastern Time for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehva2e6682b10441 **NOTE: Please do…
ALD Connect will be hosting four Bootcamps in 2021. These will be half-day virtual meetings. Each will consist of four webinars and an Ask the Experts session. Register here. 11:00 AM EDT Standards of Care, Assessments 12:00 PM EDT Crucial Conversations 1:00 PM EDT Mental Health and Impact on Relationships and Families 2:00 PM EDT…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Tuesday, May 4th, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted families. *Please note the time of this call differs from past calls.* Please reach out to [email protected] if you have any questions. Please use the…
Please join your fellow ALD Patients, Families, and Advocates for the Monthly WorkGroup 4 Meeting to be held THURSDAY, MAY 20th, 2021 at 7-8pm EDT (UTC-4 Time). Bring your ideas and willingness to discover ways that we can work together to help advance our ALD community goals. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehzkycdzb3a043da
