Annual Meeting – ALD Connect

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ALD Connect

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What is ALD?
Newly Diagnosed
- ALD Centers and Experts
- Frequently Asked Questions
Clinical Trials & Research
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ALD Action – Get Involved
News & Community Calendar
- News
- Community Calendar
Donate
- Program Descriptions

About Us
Contact Us
What is ALD?
Newly Diagnosed
- ALD Centers and Experts
- Frequently Asked Questions
Clinical Trials & Research
Resources
ALD Action – Get Involved
News & Community Calendar
- News
- Community Calendar
Donate
- Program Descriptions

Contact Us

Call Us
(833) 525-3266
Mail
[email protected]
Address
ALD Connect
35 Village Road Suite 100 #353306
Middleton, MA 01949, USA

Latest News

Plasma NfL and GFAP as biomarkers of spinal cord degeneration in adrenoleukodystrophy
January 8, 2021
Statement for ALD Patients Considering the COVID-19 Vaccine
December 19, 2020
Individualized Education Plan (IEP) for Children With Adrenoleukodystrophy
December 3, 2020
Autobahn Therapeutics Completes Successful Pre-IND Meeting with FDA
December 2, 2020

Instagram

ALD Connect is proud to sponsor ALD Family Weekend

ALD Connect is proud to sponsor ALD Family Weekend! We look forward to the educational sessions and opportunity to connect with community members!

Link in our bio to register.

#aldconnect #adrenoleukodystrophy #ald #adrenomyeloneuropathy #amn #newbornscreening #nbs #womenwithald #savetheboys #togetherwecan #aldfamilyweekend #campathome

CALL TO ACTION: ALD Connect is looking to collect

CALL TO ACTION: ALD Connect is looking to collect patient perspectives from newborn screening families.

We hope to compile a comprehensive list of locations of patients/caregivers, leukodystrophy centers, and physicians who receive newborn screening referrals. It is essential that we understand where patients are being diagnosed and who is taking care of them to ensure that all ALD patients and families receive quality care.

We also want to hear about how your family received news of the diagnosis. We know that the newborn screening workflow varies by state.

Please email info@aldconnect.org if you are willing to share your story with one of our parent volunteers.

#aldconnect #adrenoleukodystrophy #ald #adrenomyeloneuropathy #amn #newbornscreening #nbs #womenwithald #savetheboys

Happy Holidays from ALD Connect! We would love to

Happy Holidays from ALD Connect! We would love to see your holiday cards and photos. Please tag us or email them to info@aldconnect.org! 💙

#aldconnect #adrenoleukodystrophy #ald #adrenomyeloneuropathy #amn #newbornscreening #nbs

December 19, 2020: The ALD Connect Board of Direct

December 19, 2020:
The ALD Connect Board of Directors released this statement regarding the COVID-19 vaccine.

#aldconnect #adrenoleukodystrophy #ald #adrenomyeloneuropathy #amn #newbornscreening #nbs #covid19

Community Call: Symptomatic Women Gracie Morgan f

Community Call: Symptomatic Women

Gracie Morgan from MedLeaf, LLC will be joining us on December 28, 2020!

Link in bio to register!

Have you or a family member been diagnosed with ad

Have you or a family member been diagnosed with adrenoleukodystrophy (ALD) or adrenomyeloneuropathy (AMN)?

We are here to help. Please email us at info@aldconnect.org or call us at (833) 525-3266.

Please like this post so other ALD patients and families can find us!

#adrenoleukodystrophy #ald #adrenomyeloneuropathy #amn #newbornscreening #nbs #savetheboys #cureald #fightald

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