Annual Meeting – ALD Connect

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ALD Connect

About Us
Contact Us
What is ALD?
Newly Diagnosed
- ALD Experts
- Frequently Asked Questions
Research
Resources
Get Involved
News & Events
- News
- Events
Donate
- Program Descriptions

About Us
Contact Us
What is ALD?
Newly Diagnosed
- ALD Experts
- Frequently Asked Questions
Research
Resources
Get Involved
News & Events
- News
- Events
Donate
- Program Descriptions

Contact Us

Call Us
(833) 525-3266
Mail
info@aldconnect.org
Address
ALD Connect
35 Village Road Suite 100 #353306
Middleton, MA 01949, USA

Latest News

Utah newborns now screened for X-linked adrenoleukodystrophy
October 1, 2020
Saskatoon family looking for provincial funding to cover son’s U.S. medical treatment for disease
September 2, 2020
bluebird bio Presents New Results from Clinical Development Program of elivaldogene autotemcel (eli-cel, Lenti-D™) Gene Therapy for Cerebral Adrenoleukodystrophy (CALD), Including Updated Long-Term Data, at the 46th Annual Meeting of the EBMT
August 29, 2020
Running miles for ALD: Grafton father’s mission to fund research
August 14, 2020

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We are thankful for everyone in our ALD community:

We are thankful for everyone in our ALD community: patients who battle the disease, families who help and support patients, physicians and providers for dedicating their time and effort to caring for patients and saving lives, researchers who search for answers to our biggest questions, industry partners for working to bring patients therapies, and advocates who fight for policy and access. 💙

Thank you for your support! #ald #adrenoleukodyst

Thank you for your support!

#ald #adrenoleukodystrophy #aldconnect

Our Annual Meeting and Patient Learning Academy wo

Our Annual Meeting and Patient Learning Academy would not have been possible without our sponsors. Thank you!

Thank you to everyone who made our 2020 ALD Connec

Thank you to everyone who made our 2020 ALD Connect Annual Meeting and Patient Learning Academy a success! #aldconnect

Dr. Molly Regelmann, Dr. Troy Lund, Dr. Keith Van

Dr. Molly Regelmann, Dr. Troy Lund, Dr. Keith Van Haren, Dr. Florian Eichler, and Dr. Joshua Bonkowsky answer questions from the ALD community during our “Ask the Experts” panel. #ald #adrenokeukodystrophy #aldconnect

Restless Leg Syndrome: It’s a real thing. It exi

Restless Leg Syndrome: It’s a real thing. It exists. It’s not a joke. Dr. Winkleman explains symptoms and solutions. #ald #adrenoleukodystrophy #aldconnect

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