Who We Are

ALD Connect is governed by a Board of Directors made up of fourteen members. Each member brings a depth of experience and a unique perspective to the governance of ALD Connect.

Board of Directors:

Greg Benton – ALD/AMN Patient Advocate, CA
Josh Bonkowsky, MD PhD – ALD/AMN Clinician-Scientist, University of Utah, UT
Patti Chapman – ALD/AMN Patient Advocate, CA
Florian Eichler, MD – ALD/AMN Clinician-Scientist, Harvard/Mass General Hospital, MA
Jen Farmer – MS, CGC – ALD/AMN Patient Advocate
Ali Fatemi, MD – ALD/AMN Clinician-Scientist, Kennedy Krieger Institute, MD
Stephan Kemp, PhD – ALD/AMN Scientist, Academic Medical Center, Amsterdam, the Netherlands
Ben Lenail – ALD Connect Business Strategy Officer, based in Palo Alto, CA
Troy Lund, MD PhD – ALD/AMN Clinician-Scientist, University of Minnesota, MN
Timothy Maguire – ALD/AMN Patient Advocate, Philadelphia, PA
Kathleen O’Sullivan-Fortin, Esq – ALD/AMN Patient Advocate, Boston, MA
Amber Salzman, PhD – ALD/AMN Advocate, StopALD Foundation
Alex Sherman – Clinical Database Specialist, Harvard/Mass General Hospital, MA
Keith Van Haren, MD – ALD/AMN Clinician-Scientist, Stanford University, CA