ALD Connect Celebrate Rare Disease Day 2025 with the Launch of a Brand New Website

We are thrilled to announce the launch of our brand-new ALD Connect website to celebrate Rare Disease Day. This milestone reflects our commitment to providing a more accessible and informative platform for our ALD community.

Whether you are a patient, caregiver, researcher, clinician, or advocate, our new website is designed to provide easy access to the information, resources, and connections you need.

Thank you to our Patient-Led Planning Committee for offering input, and to the patients and families who shared photos. We are grateful for your contributions to making this site as impactful as possible.

We would like to extend our appreciation to the team at Bubbly Consulting for their dedication, creativity, and tireless efforts in bringing our website to life. Their expertise, attention to detail, responsiveness, and commitment to excellence have helped us create a resource that truly reflects our mission and vision. We are thankful for their partnership and for going above and beyond to make this project a success.

We invite you to explore our new website, provide feedback, and join us in spreading awareness. Rare Disease Day represents a crucial opportunity to amplify the voices of the ALD community, and we are honored to mark the occasion with this launch.