News and Events

April 20, 2016,

X-ALD 101: Clinical Aspects and Screening Methods Webinar

April 20, 2016 at 3:00-4:30PM ET
 
Dear Newborn Screening Community: 

In September 2015, the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) recommended to the Secretary of Health and Human Services (HHS) to expand the Recommended Uniform Screening Panel (RUSP) to include X-linked Adrenoleukodystrophy (X-ALD). As most of you know, Secretary Burwell recently accepted this recommendation to expand the RUSP to include addition of X-ALD (and Mucopolysaccharidosis type I). 

Some newborn screening programs in the US are currently screening for X-ALD and others will follow in the coming years. There is a need for more information sharing to better understand the clinical aspects of X-ALD and available screening methods.

We are pleased to announce a webinar, “X-ALD 101: Clinical Aspects and Screening Methods” to be held on Wednesday April 20, 2016 from 3:00-4:30PM ET. This webinar is geared towards those who are or may be responsible for screening, diagnosing and treating X-ALD. This webinar is sponsored by APHL’s Quality Assurance/Quality Control Subcommittee of the Newborn Screening and Genetics in Public Health Committee and the Newborn Screening Quality Assurance Program, Centers for Disease Control and Prevention.

The webinar will provide the audience with information regarding the clinical aspects of X-ALD inclusing an overview of the disease, available screening methods, follow-up and diagnostic evaluation, treatment options and available CDC Quality Assurance materials. Please find below the agenda for the webinar. 

CLICK HERE for webinar agenda and dial-in information.

If you have any questions, please contact Laura Russell at laura.russell@aphl.org, 240.485.2703