Donate Now!
Just Diagnosed? Start Here!
 
  Clinical
ALD Trials
Trials
Browse Recruiting Trials
Clinical Trial News
Clinical Trials 101
Do you have suggestions, feedback, or
questions about ALD Connect?


Email us at: info@aldconnect.org
 
 

Clinical Trials in ALD/AMN

 
Clinical research is the only way to turn promising science into treatments for people. Learn more about the role of clinical research in the development of new treatments for people with ALD/AMN and how you can get involved.

What is clinical research?

Clinical trials, also referred to as clinical research, is research that occurs in human subjects. Most countries around the world have a central government agency (e.g. the Food & Drug Administration in the USA or the European Medicines Agency in Europe) that monitors clinical research to ensure that research is conducted in both a safe and ethical manner. 

Why is clinical research so important to finding a cure?

People with ALD who enroll in a clinical trial are contributing to improved health care for everyone with the disease. Even when the results of a trial are negative, we learn that much more about the disease as well as how to look for more promising new treatments.

Learn more about clinical research

Research Opportunities:

Clinical research in ALD
There are a growing number of opportunities for people with ALD/AMN to participate in clinical research, both interventional and observational. View the listing of current clinical trials to determine if you may be a candidate for ongoing research.

Healthy volunteers
There are many ways that family members, loved-ones, and caregivers can help the effort. Some studies need healthy volunteers to participate. View the listing of current clinical trials to determine if you may be a candidate for ongoing research.

Tissue Donation
Postmortem tissue, specifically brain and spinal cord tissue, can be used to study ALD.  It can be a difficult decision for some people to donate upon their death.  However, many find it gives them a sense of purpose in knowing that their donation will further ALD research.  If you'd like to discuss this further, we recommend the Maryland Brain and Tissue Bank as a trusted resource.

 
   
 

For Patients & Families
A guide for newly diagnosed patients & families
Learn More about ALD?
ALD Educational Seminars
Find an ALD/AMN specialist
Connect with other patients & families
Take action!
Register for ALD Connect updates
For Researchers
Review the standard of care for ALD
Membership & Site listing
ALD News & Events
Sample sharing & access
Clinical Trial Database
Post a Clinical Trial
Trials
Browse Recruiting Trials
Clinical Trial News
Clinical Trials 101

Get Involved
Learn about ALD
Raise Awareness
Help find a cure
Build a sense of community
Attend the ALD Connect Annual Mtg
About Us
Our Mission
Our Structure
Our Sponsors & Finances
Our Research
ALD SPECIALIST
Contact Us
Connect with us: Donate Now!       Help       Sitemap       Contact Us