For Patients & Families

Become an ALD Connect Member

Join ALD Connect

All members of the ALD community (patients, families, scientists, industry partners) are welcome to join ALD Connect.

Here’s how you can join

1. All are welcome to join our email list or follow us on Twitter@ALDconnect in order to stay up to date with new scientific developments, educational activities, and clinical trial options.

2. If you are a a patient, family member, or advocate, you will soon be able join the ALD Connect Social Network. This network is designed exclusively for ALD/AMN patients and families, and will allow them to connect, meet-up, plan events, and discuss their experiences. The site will serve as a “walled garden” of privacy and purpose that is not available through other social networks (e.g. Facebook). Most uniquely, it will include design features intended to empower its members by providing a strong and unified voice for guiding research and advocacy within the larger ALD Connect network. In order to stay up to date with the launch of the ALD Connect Social Network, please join our email list or follow us on Twitter @ALDconnect.

3. If you are a clinical researcher or industry partner who is interested in joining the ALD Connect Clinical Trial Network, contact us at To see what is required, check here.