For Patients & Families

Resources for Patients and Families

Clinical research is the only way that promising science will become treatments and cures for ALD/AMN. Patients and caregivers are all incredibly important to this process. ALD Connect is committed to providing accurate, up-to-date information for all stakeholders in the clinical research process.

FDA Resources on Orphan Diseases

In conjunction with Rare Disease Day 2014, FDA has launched a new website with resources for Patients, Advocacy Groups, Research Investigators and Drug Developers. FDA’s goal is to make these educational resources accessible to a broad audience. While the table below identifies the intended audience for each of the topics, these educational resources are meant to serve as a beneficial tool to all rare disease stakeholders. Additional cross-cutting rare disease topics will continue to be added to this webpage over time.

ALD Connect Trial Resources

Search for a trial or clinical research study that is right for you:

Adrenal Insufficiency

ALD Educational Webinars

Attend an online seminar about critical clinical trial topics. Learn more.

Find an ALD/AMN Specialist in Your Area

Find a clinic in your area that provides multidisiplinary care for ALD/AMN. Find a doctor.