Patient Learning Academy

January 01, 2016,

Patient Learning Academy

Live Stream … San Diego Patient Learning Academy

Thursday, November 16th, 2016

The videos that are viewable right now are varied in quality and missing segments due to a very poor hotel Internet connection. A full set of high quality edited videos will be uploaded in early December.



ALD Connect Patient Learning Academy

Saturday, February 20th, 2016

Drs. Florian Eichler and Keith Van Haren will discuss ALD/AMN issues, current ALD clinical trials, and disease management. This event will also present an excellent opportunity to meet and talk with Drs. Van Haren and Eichler along with other ALD/AMN patients and caregivers in various break-out sessions.

WHEN? Saturday, February 20th, 2016 This event will be a full day event beginning at 8am and enting at 5pm.

WHERE? Omni Austin Hotel at SouthPark 4140 Governors Row Austin, Texas 78744

AGENDA: To download & save the agenda, click here.

Austin PLA Agenda

LODGING: We have a discounted room block at the Omni Austin Hotel at Southpark at $199/night (+taxes & fees). To book a room, please click on the following room block link and enter the arrival and departure dates at ALD Connect Room Block. You may also visit, click on ‘More options’ under the reservation tab and enter group code 1180080602 or call 1-800-THE-OMNI and ask for the ALD Connect room block. Discounted room cut-off date: January 28th, 2016. REGISTRATION*: Registration is now open! Registration fee is $35.00 for all. Each additional guest is $10.00 *Registration includes a light breakfast, lunch and snacks. Click here to register for the event. Registration will close on Wednesday, February 17th. Hope to see you there!