News and Events

February 04, 2016,

Hurry up, Burwell, lives are at stake 

The Hill published an article on ALD being added to the Recommended Screening Panel.
Secretary Burwell has had 4 months to add ALD to the newborn screening list. What’s the wait?  
California, New Jersey and Connecticut are ready to start. Babies lives are at stake! Please share and ask your friends and family to sign this petition! Read more