This video seminar provides a basic overview of ALD for patients, families, and physicians.
What is a genetic disease? 0:00 – 0:38 sec
What gene is responsible for ALD and how is it inherited? 0:39 – 1:48 sec
How does the ALD gene defect lead to symptoms in men and women? 1:49 – 2:39 sec
What is an ALD genotype and phenotype? 2:39 – 3:50 sec
What should I know about the AMN phenotype? 3:51 – 5:00 sec
What should I know about the adrenal insufficiency phenotype? 5:00 – 5:41 sec
What should I know about the cerebral demyelinating phenotype? 5:42 – 7:39 sec
What should I know about diagnosis and treatment for ALD? 7:40 – 8:25 sec
What is in store for people affected by ALD? 8:26 – 9:28 sec
Produced by Youreka Science in collaboration with ALD Connect, Inc.
Video #2: AMN Exercise Video
This video was created by Ben Lenail, a 48-year old AMN patient, to highlight possible exercises (weight-bearing, balance, core strength, Pilates) for adult men and women suffering from AMN.
This video starts with a 4-minute animated "whiteboard tutorial" on the physical limitations of individuals with AMN, and then shows Ben's exercise routine.
Produced by Ben Lenail in collaboration with ALD Connect, Inc.