Clinical Trials in ALD/AMN
Clinical research is the only way to turn promising science into treatments for people. Learn more about the role of clinical research in the development of new treatments for people with ALD/AMN and how you can get involved.
What is clinical research?
Clinical trials, also referred to as clinical research, is research that occurs in human subjects. Most countries around the world have a central government agency (e.g. the Food & Drug Administration in the USA or the European Medicines Agency in Europe) that monitors clinical research to ensure that research is conducted in both a safe and ethical manner.
Why is clinical research so important to finding a cure?
People with ALD who enroll in a clinical trial are contributing to improved health care for everyone with the disease. Even when the results of a trial are negative, we learn that much more about the disease as well as how to look for more promising new treatments. Learn more about clinical research
Clinical research in ALD
There are a growing number of opportunities for people with ALD/AMN to participate in clinical research, both interventional and observational. View the listing of current clinical trials to determine if you may be a candidate for ongoing research.
There are many ways that family members, loved-ones, and caregivers can help the effort. Some studies need healthy volunteers to participate. View the listing of current clinical trials to determine if you may be a candidate for ongoing research.
Postmortem tissue, specifically brain and spinal cord tissue, can be used to study ALD. It can be a difficult decision for some people to donate upon their death. However, many find it gives them a sense of purpose in knowing that their donation will further ALD research. If you’d like to discuss this further, we recommend the Maryland Brain and Tissue Bank as a trusted resource.